20.500.12556/ReVIS-13967 ZDRAVSTVENA NEGA PACIENTA Z MULTIPLO SKLEROZO NURSING CARE OF A PATIENT EITH MULTIPLE SCLEROSIS Izhodišča: Multipla skleroza je kronična nevrodegenerativna bolezen, ki najpogosteje prizadene mlade odrasle in povzroča postopno okvaro centralnega živčnega sistema. Bolezen se kaže z raznolikimi nevrološkimi simptomi, kot so utrujenost, motnje gibanja, mišična oslabelost ter psihične težave, kar pomembno vpliva na kakovost življenja pacientov. Zaradi nepredvidljivega poteka bolezni in raznolikosti simptomov je obravnava pacientov kompleksna ter zahteva individualiziran in multidisciplinarni pristop zdravstvene nege. Namen raziskave je bil raziskati pomen in potrebe po zdravstveni negi pri pacientu z multiplo sklerozo. Metode: Raziskava je temeljila na kvalitativnem načinu raziskovanja in deskriptivni metodi dela. Za potrebe empiričnega dela so bili zbrani in analizirani primarni in sekundarni viri. Primarni podatki za analizo so bili pridobljeni s tehniko intervjuvanja. Sekundarni podatki so bili zbrani s pomočjo pregleda domače in tuje strokovne literature ter spletnih baz. Rezultati: Rezultati so pokazali, da multipla skleroza pomembno vpliva na fizično in psihično stanje pacientov ter na njihovo stopnjo samostojnosti. Najpogosteje so bile izpostavljene težave, kot so utrujenost, težave s hojo, mišična oslabelost ter psihične težave, kot so depresija in anksioznost. Pacienti se z napredovanjem bolezni soočajo predvsem z uporabo različnih prilagoditev, pripomočkov za gibanje ter rednimi počitki. Pomembno vlogo pri obvladovanju bolezni ima podpora družine in bližnjih, medtem ko so izkušnje z vključevanjem v društva različne. Večina pacientov sodeluje z nevrologi, medicinskimi sestrami in fizioterapevti ter ocenjuje zdravstveno obravnavo kot ustrezno, čeprav so bile izpostavljene tudi predolge čakalne dobe in potreba po boljšem usklajevanju zdravstvenih storitev. Razprava: Ugotovili smo, da se potrebe pacientov z multiplo sklerozo med posamezniki pomembno razlikujejo in se s potekom bolezni spreminjajo. Pomembno vlogo pri obvladovanju bolezni ima podpora v domačem okolju, predvsem s strani družine, ter vključevanje v zdravstveni sistem preko multidisciplinarnega pristopa. Pacienti so večinoma zadovoljni z zdravstveno nego, vendar poudarjajo pomen zgodnje podpore ob postavitvi diagnoze ter večje dostopnosti določenih zdravstvenih storitev, zlasti fizioterapije. Rezultati poudarjajo pomen individualizirane zdravstvene nege, ki se prilagaja stanju in potrebam posameznega pacienta. Background: Multiple sclerosis is a chronic neurodegenerative disease that most commonly affects young adults and causes progressive damage to the central nervous system. The disease is manifested by various neurological symptoms such as fatigue, mobility impairments, muscle weakness, and psychological issues, which significantly affect patients’ quality of life. Due to the unpredictable course of the disease and the diversity of symptoms, the care of patients is complex and requires an individualized and multidisciplinary nursing approach. The aim of this study was to explore the importance and needs of nursing care in patients with multiple sclerosis. Methods: The study was based on a qualitative research approach and a descriptive research design. Primary and secondary sources were used in the empirical part of the study. Primary data were collected using the interview technique, while secondary data were obtained through a review of domestic and international professional literature and online databases. Results: It was found that multiple sclerosis significantly affects the physical and psychological condition of patients as well as their level of independence. The most commonly reported difficulties included fatigue, walking difficulties, muscle weakness, and psychological issues such as depression and anxiety. As the disease progresses, patients mainly cope by using various adaptations, mobility aids, and regular rest. Family and close relatives play an important role in disease management, while experiences with involvement in associations vary. Most patients collaborate with neurologists, nurses, and physiotherapists and rate healthcare services as adequate, although long waiting times and the need for better coordination of healthcare services were highlighted. Discussion: The findings show that the needs of patients with multiple sclerosis differ significantly between individuals and change over the course of the disease. Family support in the home environment plays an important role in disease management, as does involvement in the healthcare system through a multidisciplinary approach. Patients are generally satisfied with nursing care, but emphasize the importance of early support at the time of diagnosis and better accessibility of certain healthcare services, especially physiotherapy. The results highlight the importance of individualized nursing care tailored to the condition and needs of each patient. multipla skleroza zdravstvena nega pacient multidisciplinarni pristop kakovost življenja. multiple sclerosis nursing care patient multidisciplinary approach quality of life. true false false Slovenski jezik Angleški jezik Diplomsko delo/naloga 2026-06-02 19:48:24 2026-06-02 19:48:24 2026-06-03 03:27:35 0000-00-00 00:00:00 2026 0 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 1970-01-01 25016 4377$$jeric_nik_diplomska_naloga.pdf 4377$$jeric_nik_diplomska_naloga.pdf 1 21BD4974CFC67144BAE596BEF2992225 a2e62d94c1e3c4385bb6790216f3f701dd4ed80a42719dc09c87985dc9b89aa7 40cc6d22-5eab-11f1-8e51-001a4af901a5 https://revis.openscience.si/Dokument.php?lang=slv&id=16933 Univerza v Novem mestu - Fakulteta za zdravstvene vede 0 0 0