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Title: Doživljanje psihosocialnih potreb onkoloških bolnikov v tercialni fazi bolezni Authors: Kelc, Teodor (Author) Karajić, Emil (Mentor) More about this co-author... Language: Slovenian Work type: Bachelor thesis/paper Organization: FUDS - School of advanced social studies Abstract: Osrednja tema diplomske naloge je doživljanje psihosocialnih potreb onkoloških bolnikov v tercialni fazi bolezni. Vključuje tako doživljanje kot tudi zagotavljanje psihosocialnih potreb bolnikov v tej fazi. Opisujemo psihosocialne potrebe skozi celotno obdobje poteka bolezni; od diagnoze do tercialne faze bolezni, saj se psihosocialne potrebe skozi napredovanje bolezni spreminjajo. Bolezen raka je razdeljena na več različnih faz, in tako se psihosocialne potrebe temu tudi prilagajajo, prav tako se prilagajajo načini in možnosti zdravljenja. V teoretičnem delu diplomske naloge obravnavamo medicinske vidike onkoloških obolenj skozi zgodovino in danes. Skozi kritičen pregled literature obravnavamo vzroke za nastanek bolezni, simptome bolezni, stadije boli in načine zdravljenja. Za onkološke bolnike je zelo pomembna pravilna prognoza in pravočasno odkritje raka. S tem namenom v teoretičnem delu govorimo tudi o preventivi. V empiričnem delu smo opravili intervjuje z udeleženci, ki so ustrezali glavnima pogojema za udeležbo. To sta bila diagnoza raka in tercialna faza bolezni. Izvedli smo pet polstrukturiranih intervjujev, ki so potekali na domu bolnikov. Za udeležbo smo se predhodno dogovorili s svojci in s samim bolnikom ter pridobili dovoljenje za glasovno snemanje. Izkazalo se je, da so psihosocialne potrebe onkoloških bolnikov kompleksne, da so predvsem individualne in odvisne od posameznikove vrste bolezni, hitrosti napredka in od odnosov, ki jih imajo bolniki s svojimi najbližjimi. Diagnoza rak pri posameznikih povzroča določeno stisko in zdravstveni tim je v začetni fazi pomemben faktor, ki vpliva na to, kako se bo znal bolnik soočiti z boleznijo. Predvsem je pomembno, na kakšen način bolnik izve za diagnozo. Prav tako je psihosocialna pomoč v začetni fazi pomembna za psihično lažje premagovanje bolezni, in nujno je psihosocialne potrebe zaznati že v začetku. Če to razumemo, potem lahko bolniku že na začetku prihranimo marsikatero stisko in duševne težave. Za veliko težavo se je izkazala stigma ob prejeti diagnozi, saj je v širši družbi bolezen še vedno tabu tema, kadar gre za kakšnega bolnika v ožji okolici. Kljub velikem napredku glede ozaveščanja, bolniki živijo z občutkom odrinjenosti in nesprejetosti. Raziskovanje tega področja ni pomembno zgolj za bolnike, ki se soočajo s tovrstno boleznijo, temveč tudi tako za svojce in prijatelje kot tudi širšo družbo. Keywords: rak, psihosocialne potrebe, strah, sočutje, dostojanstvo, smrt. Year of publishing: 2023 VisID: 22365 Views: 400 Downloads: 24 Files:  2738$$zakljucno_delo.pdf (755,06 KB)   Metadata:

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Secondary language

Language:	English
Title:	Experienced psychosocial needs of oncology patients in the tertiary phase of the disease
Abstract:	The central theme of the diploma thesis is the experience of the psychosocial needs of oncology patients in the tertiary phase of the disease. It includes both experiencing and providing for the psychosocial needs of patients in this phase. We describe psychosocial needs throughout the course of the disease, from diagnosis to the tertiary stage of the disease, as psychosocial needs change during the progression of the disease. Cancer has several different phases, and thus the psychosocial needs are adapted to this, as are the treatment methods and options. In the theoretical part of the thesis, we discuss the medical aspects of oncological diseases throughout history and today. Through a critical review of the literature, we discuss the causes of the disease, the symptoms of the disease, the stages of the disease, and the treatment methods. Correct prognosis and cancer screenings are crucial for oncology patients. For this purpose, we also address prevention in the theoretical part. In the empirical part, we conducted interviews with participants who met the main criteria for participation. Those were a cancer diagnosis and a tertiary stage of the disease. We conducted five semi-structured interviews that took place at the patients' homes. Participation was previously agreed upon with relatives and the patient, and permission for voice recording was obtained. It turned out that the psychosocial needs of oncology patients are complex. They are primarily individual and depend on the individual's type of disease, the speed of progress, and the relationships that patients have with their loved ones. A cancer diagnosis causes specific distress in individuals, and the medical team is an essential factor in the initial phase that affects how the patient will be able to cope with the disease. Above all, how the patient learns about the diagnosis is important. Also, psychosocial help in the initial phase is vital for overcoming the disease psychologically, and it is essential to detect psychosocial needs at the beginning. If we understand this, we can save the patient a lot of distress and mental problems right from the start. The stigma upon receiving the diagnosis turned out to be a big problem because, in the broader society, cancer is still taboo for a patient and its immediate surroundings. Despite significant progress in terms of raising awareness, patients deal with a feeling of rejection and unacceptance. Research in this area is important not only for patients facing this type of disease but also for their relatives, friends, and the wider society.
Keywords:	cancer, psychosocial needs, fear, compassion, dignity, death.

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