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Title:VREDNOST SPLETNE PLATFORME POSVETUJ.SE ZA BOLNIKE S KRVNIM RAKOM
Authors:ID Brajović Hajdenkumer, Slavka (Author)
ID Stepišnik Perdih, Tjaša (Mentor) More about this mentor... New window
Files:.pdf 3088$$zakljucno_delo.pdf (1,18 MB)
MD5: 1E323EC91359994B53EB05C80DE3A608
 
Language:Slovenian
Work type:Master's thesis/paper
Organization:FUDS - School of advanced social studies
Abstract:Bolniki s krvnim rakom se ob spoprijemanju z diagnozo, zdravljenjem in rehabilitacijo soočajo s številnimi obremenjujočimi mislimi in čustvi. Približno tretjina onkoloških bolnikov med zdravljenjem in okrevanjem doživlja globljo duševno stisko, zaradi katere poiščejo strokovno pomoč. Psihosocialna podpora v Sloveniji je zaradi preobremenjenosti psihoonkološke službe in pomanjkanja kliničnih psihologov v sistemu javnega zdravstva ter dodatno še zaradi posledic epidemije covid-19 bolnikom z rakom težko dostopna v času, ko jo ti najbolj potrebujejo. Zato je Slovensko združenje bolnikov z limfomom in levkemijo, L&L, septembra 2021 vzpostavilo spletno platformo Posvetuj.se, ki neposredno odgovarja na nenaslovljene potrebe bolnikov s krvnim rakom in njihovih bližnjih po psihosocialni podpori. Da bi empirično ugotovili, kakšna je vrednost spletne platforme Posvetuj.se za uporabnike, smo opravili kvalitativno raziskavo. V vzorec smo vključili pet bolnikov s krvnim rakom, ki so se udeležili enega ali več spletnih posvetov s kliničnimi psihologinjami. Na glavno raziskovalno vprašanje, kakšna je vrednost spletnih posvetov s kliničnimi psihologinjami na spletni platformi Posvetuj.se, so uporabniki poročali o razbremenitvi; olajšanju; usmeritvah za prostovoljsko delo; obvladovanju prisilnih misli s preusmerjanjem in sprostitvenimi tehnikami; učenju sprejemanja situacije; varnem prostoru, v katerem lahko izraziš strahove; sprejetosti, podpori in razumevanju in priložnosti, da na stvari uporabnik pogleda z druge, bolj razumske perspektive. Kot osrednjo vrednost Posvetuj.se izpostavljajo hiter dostop do psihosocialne podpore, strokovnost in brezplačnost storitve ter lajšanje duševne stiske. Zato lahko utemeljeno sklepamo, da spletna platforma Posvetuj.se pomembno prispeva k primarni in sekundarni preventivi duševnega zdravja bolnikov s krvnim rakom.
Keywords:rak, bolniki s krvnim rakom, duševna stiska, duševno zdravje, psihosocialna podpora, psihoonkologija, spletno svetovanje
Year of publishing:2023
PID:20.500.12556/ReVIS-10301 New window
Publication date in ReVIS:01.02.2024
Views:747
Downloads:16
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Secondary language

Language:English
Title:THE VALUE OF THE POSVETUJ.SE ONLINE PLATFORM FOR PATIENTS WITH BLOOD CANCER
Abstract:Blood cancer patients face many burdensome thoughts and emotions when dealing with diagnosis, treatment and rehabilitation. Around a third of cancer patients experience deeper mental distress during treatment and recovery that leads them to seek professional help. Psychosocial support in Slovenia, however, is difficult to access at a time when cancer patients need it most, due to the heavy workload of the psycho-oncology service and the lack of clinical psychologists in the public health system, in addition to the impact of the Covid-19 epidemic. That is why in September 2021, the Slovenian Association of Patients with Lymphoma and Leukemia, L&L, launched Posvetuj.se, an online platform that provides answers directly to the unaddressed psychosocial support needs of patients with blood cancer and their loved ones. In order to empirically identify the value of the online platform Posvetuj.se for users, a qualitative study was conducted. The sample included five patients with blood cancer who attended one or more online consultations with clinical psychologists. In response to the main research question, what is the value of online consultations with clinical psychologists on the online platform Posvetuj.se, users reported relief; facilitation; guidance on volunteering; coping with intrusive thoughts through redirection and relaxation techniques; learning to accept the situation; a safe space in which to express fears; acceptance, support and understanding and the opportunity to see things from a different, more rational perspective. Users highlighted that the main value of Posvetuj.se is its quick access to psychosocial support, its professionalism, the fact that it is free of charge and an alleviation of mental distress. Therefore, it is reasonable to conclude that the online platform Posvetuj.se makes an important contribution to primary and secondary mental health prevention for patients with blood cancer.
Keywords:cancer, blood cancer patients, mental distress, mental health, psychosocial support, psycho-oncology, online consultations


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