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Title: AKTIVNA VLOGA SVOJCA V PALIATIVNI OSKRBI Authors: ID Špile, Matjaž (Author) ID Leskovic, Ljiljana (Mentor) More about this mentor... Files: RAZ_Spile_Matjaz_i2024.pdf (814,95 KB) MD5: 9C802C854E6D8B4B8FC5F13BED756817   Language: Slovenian Work type: Bachelor thesis/paper Typology: 2.11 - Undergraduate Thesis Organization: UNM FZV - University of Novo mesto - Faculty of Health Sciences Abstract: Izhodišča: Vloga svojcev v paliativni zdravstveni negi je pomembna in odgovorna. Čeprav je bil na področju paliativne oskrbe dosežen velik napredek, se še vedno pojavljajo težave pri učinkoviti koordinaciji, zato smo se odločili preučiti, kako svojci dojemajo svojo aktivno vlogo pri paliativni oskrbi. Namen naše raziskave je bil ugotoviti in analizirati aktivno vlogo svojca v paliativni oskrbi bližnjega. Metode: Uporabili smo kvantitativno metodo raziskovanja in deskriptivno metodo dela. Anketni vprašalnik je vseboval 14 vprašanj zaprtega tipa. Raziskovalni vzorec je zajemal 100 svojcev z izkušnjo paliativne oskrbe. Podatke smo statistično obdelali s programom Microsoft Excel in dobljene rezultate grafično prikazali. Rezultati: Naša raziskava je pokazala, da je velik delež svojcev le delno seznanjen s paliativno oskrbo (47 %). Kljub temu večina svojcev ve, kaj pomeni paliativna oskrba in je bila vključena ali delno vključena v ta proces (88 %). Njihova aktivnost ni bila obsežna, saj je bilo aktivnih le malo več kot polovica (56 %), medtem ko je bil majhen delež delno aktivnih (14 %). Ugotovili smo, da imajo svojci velika pričakovanja glede paliativne oskrbe, komunikacija z zdravstvenim osebjem jim veliko pomeni ter so z njo večinoma zadovoljni. Za svojce je bila vključenost v paliativno oskrbo zelo pomembna, nekateri pa se glede tega niso mogli opredeliti. Približno petina svojcev (21 %) je podala opombe ali predloge za izboljšanje informiranosti glede paliativne oskrbe. Razprava: Ugotovili smo, da si svojci glede informiranosti niso enotni, saj jim manjka veliko splošnih informacij o paliativni oskrbi. Posledično imajo o njej zelo različno mnenje, pričakovanja pa so razmeroma velika. Večina je naklonjena aktivni vlogi v procesu paliativne oskrbe, a menijo, da komunikacija z zdravstvenim osebjem ne ustreza njihovim potrebam. Keywords: paliativna oskrba, svojci, aktivna vloga, družinski člani, raziskava. Year of publishing: 2024 PID: 20.500.12556/ReVIS-10506  COBISS.SI-ID: 194942467  Publication date in ReVIS: 08.05.2024 Views: 753 Downloads: 32 Metadata:    Cite this work Plain text BibTeX EndNote XML EndNote/Refer RIS ABNT ACM Ref AMA APA Chicago 17th Author-Date Harvard IEEE ISO 690 MLA Vancouver : Copy citation

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Language:	English
Title:	THE ACTIVE ROLE OF RELATIVES IN PALLIATIVE CARE
Abstract:	Departures: The role of relatives in palliative care is crucial and requires a lot of responsibility. Although great progress has been made in palliative care, there are still difficulties in establishing effective care coordination. We therefore decided to explore how relatives perceive their active role in the palliative care process. The aim of our study was to identify and analyze the active role of the relative involved in the palliative care of a loved one. Methods: We used a quantitative research method and a descriptive method. The questionnaire consisted of 14 closed-ended questions. The survey sample consisted of 100 relatives who had experienced an active role in the palliative care process. The data were statistically processed using Microsoft Excel and the results were presented graphically. Results: Our survey showed that a large proportion of relatives are still partially informed about palliative care (47%). However, the majority of relatives know what palliative care means and have been involved or partially involved in the palliative care process (88%). However, relatives' activity was lower, with just over half being active (56%), while a small proportion were partially active (14%). We found that relatives have high expectations of palliative care and communication with health professionals is very important to them. However, relatives are more satisfied with communication than dissatisfied. Involvement in the palliative care process itself was very important to relatives, but some were not able to make up their minds about this. Around one fifth of relatives (21%) made comments or suggestions to improve information about palliative care. Discussion: We found that relatives are divided about information, as they lack a lot of general information about palliative care. A large proportion of relatives express different opinions and views on palliative care, and expectations are quite high. The majority of relatives are positive about playing an active role in the palliative care process. However, relatives' views on communication with health professionals do not meet their needs.
Keywords:	palliative care, relatives, active role, family members, research.

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