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Title:Pomen in vloga družinskih članov oseb z demenco pri zagotavljanju njihove kakovosti življenja v domačem okolju : diplomsko delo visokošolskega strokovnega študijskega programa prve bolonjske stopnje Socialna gerontologija
Authors:ID Menhard, Ana (Author)
ID Lipič, Nikolaj (Mentor) More about this mentor... New window
ID Bagari, Mitja (Comentor)
Files:.pdf DIP_Menhard_Ana_2025.pdf (1,91 MB)
MD5: 4269F38B13E19B4186FA06D3AA0DBAC3
 
Language:Slovenian
Work type:Bachelor thesis/paper
Typology:2.11 - Undergraduate Thesis
Organization:UAMEU - Alma Mater Europaea University
Abstract:Uvod: S staranjem prebivalstva se število oseb z demenco hitro povečuje, s tem pa tudi potreba po dolgoročni, čustveno in fizično zahtevni oskrbi. V Sloveniji veliko oseb z demenco živi v domačem okolju, kjer glavno vlogo pri oskrbi prevzemajo družinski člani. Namen diplomskega dela je raziskati pomen in vlogo teh družinskih članov pri zagotavljanju kakovostnega življenja oseb z demenco. Metode: Uporabljena je bila kvalitativna raziskovalna metoda z izvedbo polstrukturiranih intervjujev. V mesecu aprilu 2025 je bilo opravljenih deset intervjujev z družinskimi člani, ki v domačem okolju skrbijo za osebe z demenco. Zbrani podatki so bili kodirani in analizirani z metodo kvalitativne vsebinske analize, z namenom prepoznave osrednjih tem in vzorcev v doživljanju oskrbe, vplivu podpore ter zaznavanju kakovosti življenja. Rezultati: Ugotovitve kažejo, da lahko osebe z demenco doživljajo kakovostno življenje, če so deležne čustvene bližine, varnega okolja in prilagojenih aktivnosti. Ključno vlogo pri tem imajo družinski člani, ki s svojo prisotnostjo, podporo in skrbjo pomembno prispevajo k dobremu počutju oseb z demenco, čeprav se ob tem soočajo z izzivi, kot so izčrpanost in spremembe življenjskega sloga. Razprava: Raziskava potrjuje, da družinski člani igrajo ključno in večdimenzionalno vlogo pri zagotavljanju kakovosti življenja oseb z demenco. Njihova prisotnost, vključenost v vsakodnevne aktivnosti in predanost pomembno vplivajo na dobrobit oseb z demenco. Zato je nujno razviti oblike pomoči, ki bodo vključevale podporo tudi za družinske oskrbovalce. Naše ugotovitve pripomorejo k boljšemu razumevanju vpliva družinske podpore na dobrobit oseb z demenco ter ponujajo izhodišča za nadaljnje raziskovanje in izboljšave na področju oskrbe.
Keywords:demenca, družinski člani, kakovostno življenje, domače okolje, neformalna oskrba
Place of publishing:Maribor
Place of performance:Maribor
Publisher:A. Menhard
Year of publishing:2025
Year of performance:2025
Number of pages:42 str., [13] f. pril.
PID:20.500.12556/ReVIS-12219 New window
COBISS.SI-ID:249435651 New window
UDC:616.892.3:364-783.44(043.2)
Publication date in ReVIS:18.09.2025
Views:338
Downloads:15
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Secondary language

Language:English
Abstract:Introduction: As the population ages, the number of people with dementia is increasing rapidly, and with it the need for long-term, emotionally and physically demanding care. In Slovenia, many people with dementia live in the home environment, with family members taking the lead role in care. The aim of this thesis is to explore the importance and role of these family members in ensuring quality of life for people with dementia. Methods: The qualitative research metod used was semi-structured interviews. Ten interviews were conducted in April 2025 with family members who care for people with dementia in their home environment. The data collected were coded and analysed using qualitative content analysis methods to identify central themes and patterns in the experience of care, the impact of support and perceptions of quality of life. Results: The findings show that people with dementia can experience a good quality of life if they are provided with emotional closeness, a safe environment and adapted activities. Family members play a key role in this, as they make an important contribution to the wellbeing of people with dementia through their presence, support and care, even when faced with challenges such as exhaustion and lifestyle changes. Discussion: Research confirms that family members play a key and multidimensional role in ensuring the quality of life of people with dementia. Their presence, involvement in daily activities and commitment have a significant impact on the well-being of people with dementia. It is therefore essential to develop forms of support that also include support for family carers. Our findings contribute to a better understanding of the impact of family support on the well-being of people with dementia and offer a starting point for further research and improvements in care.
Keywords:dementia, family members, quality of life, home environment, informal care


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